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Sibling Dynamics

Bob's Last Marathon
Bob’s Last Marathon
Sibling Dynamics
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Dr. Barry J. Jacobs, noted clinical psychologist, family therapist, and author, tells us how the challenges of caring for parents with dementia affect sibling dynamics, and how to emerge as an effective team. He explains how caring for a parent can bring out the best—and worst—in adult siblings, and suggests a three-step process for sibling caregivers to work together as an effective support team.

October 13, 2021 10 Min 27 Sec TRANSCRIPT

Browse more episodes

Lena recalls how her life as a caregiver did a 180 when she met Dr. Steven E. Arnold, a leading Alzheimerʼs expert, now at Mass General Hospital—and discovered the five key elements of caring for a person with Alzheimerʼs disease.

January 13, 2021 11 min 47 sec TRANSCRIPT

Lena talks about denial—an insidious and potentially dangerous problem that many Alzheimerʼs caregivers face.

January 20, 2021 9 min 51 sec TRANSCRIPT

This episode features Katie Brandt, Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit. Katieʼs late husband, Mike, was diagnosed with FTD at the age of 29. Katie tells us about a heartbreaking decision she had to make, and the…

January 27, 2021 11 min 12 sec TRANSCRIPT

Lena recalls the moment she realized that taking care of herself was essential to caring well for Bob, and how she learned that giving our very best to our loved ones doesn’t have to mean sacrificing comfort and pleasure.

February 3, 2021 9 min 6 sec TRANSCRIPT

Lena talks about some of the common issues that come up from well-meaning friends, and ways to handle them.

February 10, 2021 11 min 23 sec TRANSCRIPT

Alexandra Morris, gerontologist and Geriatric Care Manager, talks about how connecting with your loved one’s emotional truths, sometimes over the facts, can be a kind and compassionate way of managing daily life challenges.

February 17, 2021 10 min 3 sec TRANSCRIPT

Lena reflects on the role of family in the care of a loved one with dementia, and how their true value goes deeper than the day-to-day chores.

February 24, 2021 10 min 33 sec TRANSCRIPT

Lena recalls slivers of light when the Bob she knew and loved surfaced through his dementia, and contemplates the importance of savoring and nurturing our loved one’s essence.

March 3, 2021 11 min 27 sec TRANSCRIPT

Dr. Dawn Mechanic-Hamilton, Director of Cognitive Fitness Programs and Neuropsychological Services at the Penn Memory Center, describes the concept of cognitive fitness and some key tools used to support brain health in people with mild cognitive impairment.

March 10, 2021 9 min 33 sec TRANSCRIPT

Lena talks about key roles of the caregiver team, people she came to consider family, that she gathered over time to help care for Bob as his disease progressed.

March 17, 2021 12 min 15 sec TRANSCRIPT

Lena talks about the importance of daily structure, and outlines the routines she devised to give Bob the care he needed, and give them both a sense of stability in the face of this unpredictable disease.

March 24, 2021 11 min 51 sec TRANSCRIPT

Alexandra Morris, gerontologist and Geriatric Care Manager, offers practical and compassionate strategies for coping with a common issue challenging Alzheimer’s caregivers: repetitive behavior.

March 31, 2021 10 min 59 sec TRANSCRIPT

Jennifer Fargo Lathrop, Spiritual Care Provider from the outpatient palliative care program of the Palo Alto Medical Foundation, describes palliative and hospice care, and her role as a spiritual care provider for people with dementia.

April 7, 2021 13 min 21 sec TRANSCRIPT

Rachel Wiley, Occupational Therapist, explains how dementia-related behaviors can be better understood by considering the person with dementia, the caregiver, and the environment in a given situation, and how this analysis can point to mitigation strategies.

April 14, 2021 12 min 2 sec TRANSCRIPT

Judith Johanson, MADRC Longitudinal Cohort Coordinator at Massachusetts General Hospital, describes her experience with her husband Steve, who was diagnosed with early-onset Alzheimer’s, in two types of clinical trials. She talked about how Steve wanted to contribute to research far beyond his time on earth.

April 21, 2021 12 min 5 sec TRANSCRIPT

Katie Brandt, Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, shares the emotional challenges of navigating care for both her father and her husband.

April 28, 2021 13 min 41 sec TRANSCRIPT

Lorri Bernstein, MSW, Founder of Senior Living Specialists of Philadelphia and Chicago, tells us about steps to consider in moving our loved ones from home to a care community.

May 5, 2021 10 min 22 sec TRANSCRIPT

Lena remembers the moment when it became clear that Bob would benefit from a day care program, and shares the factors that led to their choice.

May 12, 2021 11 min 01 sec TRANSCRIPT

Dr. Steven E. Arnold, Professor of Neurology at Harvard Medical School, and Translational Neurology Head and Managing Director of the Interdisciplinary Brain Center at Massachusetts General Hospital, speaks on the current state of treatment for Alzheimer’s disease.

May 19, 2021 11 min 01 sec TRANSCRIPT

Dr. Steven E. Arnold, Professor of Neurology at Harvard Medical School, and Translational Neurology Head and Managing Director of the Interdisciplinary Brain Center at Massachusetts General Hospital, speaks about lifestyle practices he recommends for Alzheimer’s patients at the time of diagnosis. These recommendations can also benefit the health and well-being of family members by reducing the risk of developing the disease.

May 26, 2021 12 min 51 sec TRANSCRIPT

Dr. Steven E. Arnold, Professor of Neurology at Harvard Medical School, and Translational Neurology Head and Managing Director of the Interdisciplinary Brain Center at Massachusetts General Hospital, talks about his process for diagnosing Alzheimer’s disease.

June 2, 2021 12 min 11 sec TRANSCRIPT

Judith Johanson, a member of the Alzheimer’s Disease Research Center at Massachusetts General Hospital, and wife of Steve, who was diagnosed with early-onset Alzheimer’s, shares the heartbreaking experience of coping with behavioral changes symptomatic of disease progression, and how recognizing that these changes were symptoms of his illness helped her navigate through trying times.

June 9, 2021 13 min 43 sec TRANSCRIPT

Alexandra Morris, a gerontologist and Geriatric Care Manager with 30 years’ experience helping families to cope with dementia and aging in many settings, offers practical advice for having productive conversations with people who suffer from dementia.

June 16, 2021 12 min 40 sec TRANSCRIPT

Lena reflects on the importance of maintaining a social life as Alzheimer’s symptoms progress, and offers practical ways she discovered to navigate the challenges.

June 23, 2021 10 min 06 sec TRANSCRIPT

Kristopher Hong, music therapist, talks about how he uses music as a tool to facilitate therapeutic processes. Music can benefit people of all ages with a range of physical and mental capabilities. But it’s especially helpful to those with Alzheimer’s disease, dementia, and other neurological conditions.

June 30, 2021 9 min 06 sec TRANSCRIPT

Katie Brandt, Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, talks about the role of art in the caring of her husband, who was diagnosed with frontotemporal dementia at a young age, and how their young son, Noah, connected with his father through a sculpture he created.

July 7, 2021 11 min 45 sec TRANSCRIPT

Stephne Lencioni, licensed Clinical Social Worker and Geriatric Care Manager with over thirty years of experience providing care planning and management to older adults and their families, discusses the why, when, and how of seeking help for family caregivers and explain that it is never too early to start gathering your team.

July 14, 2021 12 min 3 sec TRANSCRIPT

Lena shares the importance of closely monitoring outside caregivers—because even the most trusted situation can suddenly change.

July 21, 2021 10 min 46 sec TRANSCRIPT

Dr. Barry J. Jacobs, noted clinical psychologist, family therapist, and author, tells us how the challenges of caring for parents with dementia affect sibling dynamics, and how to emerge as an effective team. He explains how caring for a parent can bring out the best—and worst—in adult siblings, and suggests a three-step process for sibling caregivers to work together as an effective support team.

October 13, 2021 10 min 27 sec TRANSCRIPT