Living the Alzheimer’s Journey
A weekly podcast devoted to helping families and friends of people with Alzheimer’s disease create the best life possible for their loved ones and themselves.
We want listeners to know that they are not alone.
Each episode features firsthand stories from family caregivers and advice from professionals about facing familiar everyday challenges—while continuing to celebrate the essence of loved ones who bring light to our lives.
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Clinical Trials: An Inside Story
Judith Johanson, MADRC Longitudinal Cohort Coordinator at Massachusetts General Hospital, describes her experience with her husband Steve, who was diagnosed with early-onset Alzheimer’s, in two types of clinical trials. She talked about how Steve wanted to contribute to research far beyond his time on earth.
April 21, 2021 ● 12 Min 5 Sec ● TRANSCRIPT
Whatʼs important to our loved onesʼ well-being? How do we integrate these key elements into day-to-day activities? How does day care compare to home care? What about long-term care?
How do we plan daily routines to help our loved ones stay engaged and healthy? What about caring for ourselves? How do we respond to our loved ones compassionately, at all times? What roles can art, music, and cognitive training play in our loved onesʼ well-being?
Whom can we turn to when we need help? What are community resources we should know about? What can we expect from our family? Our friends? What roles can support groups play in our caregiving? Should we participate in clinical trials?
Denial can get in the way of moving forward. How do we recognize signs of denial and how do we overcome it? How do we begin to think about the tough decisions ahead of us? What happens when we face difficult and perhaps aggressive behavior?
Check the website regularly to find up-to-date resources for support such as helplines, classes, and books. These expert sources are gathered with the help of care professionals and organizations dedicated to the needs of people with dementia.